Out-of-Pocket Costs and Consequences of Unpaid Caregiving


Study Title: Out-of-Pocket Costs and Consequences of Unpaid Caregiving
Rationale: PhD thesis that aims to understand how care expenses impact the well-being of unpaid caregivers in Ontario
Study Description: If you live in Ontario and provide care/support on a voluntary (unpaid) basis for someone living at home, please consider participating in an online survey concerning your out-of-pocket care expenses and the consequences of these expenses on your overall income, employment, and general health. This survey also asks questions concerning the impact of COVID-19 on care expenses and financial well-being. The survey takes between 15-30 minutes to complete and is fully anonymous. To participate and/or for more information, visit is.gd/unpaidcaregivingstudy.

This study is being conducted by Husayn Marani, a PhD candidate at the University of Toronto and caregiver for his mother who has long-standing Multiple Sclerosis and early-onset dementia. Findings from this study may be used by policymakers to improve the financial well-being of Ontario’s rapidly growing community of unpaid caregivers providing care for someone living at home. If you have any questions, you may contact Husayn at husayn.marani@mail.utoronto.ca.

This is an independent PhD study. There are no other sites or organizations partnering with the study investigator (Husayn Marani) in the conduct of this study
Starting Dates: 2020-08-01
Ending Dates: 2020-12-31
Who can participate: Any Ontario resident (aged 16+) who provides unpaid (voluntary) care/support for someone living at home with a long-term (>3 months) physical or mental health condition, or age-related decline.
Location of Trial: University of Toronto (Institute of Health Policy, Management and Evaluation)
Contact Information: Husayn Marani
Trial Funding: Doctoral studies are supported by a SSHRC award