Acceptability of the Measure of Experiential Aspects of Participation (MeEAP) for use within Rehabilitation

Studies

Study Title: Acceptability of the Measure of Experiential Aspects of Participation (MeEAP) for use within Rehabilitation
Rationale: Researchers have developed the Measure of Experiential Aspects of Participation (MeEAP) to measure QP in life domains like employment, sport, mobility and exercise. We do not know whether the MeEAP can be used in rehabilitation or tele-rehabilitation settings. Specifically, it is unclear whether the MeEAP items are appropriate for rehabilitation-users. These factors limit our understanding of the benefits of QP in this domain. Therefore, this study will provide the first investigation into the acceptability of the MeEAP in rehabilitation settings. This research will contribute to the growing body of literature related both to QP and client-centered care within rehabilitation.
Study Description: Study design: A cognitive interview study Participants: We will recruit up to 30 participants for this study. Participants will be recruited primarily using online outlets via relevant support organizations across Canada (e.g., MS Society of Canada Research Portal, Revved Up, the Canadian Disability Participation Project, etc.). Research-specific social media websites (Facebook and Twitter) will also be used as platforms to disseminate information about the study. If needed, we will further recruit using presentations to relevant support groups and organizations. Potential and recruited participants will also be asked to refer other individuals. Participants will be emailed recruitment materials that can be shared with their colleagues/peers who may be interested in participating in the study. All recruitment materials and email scripts are attached.

Procedure: All recruitment materials will include a link and/or a QR code to an online survey via Qualtrics. When potential participants activate the link, they will be presented with detailed information about the purpose of the study (letter of information/informed consent form is attached). Individuals will then be invited via the survey website to consent and undergo an online screening process to confirm that they meet the eligibility criteria for the study. The survey will be terminated immediately for individuals who do not consent or who do not meet the eligibility criteria. Once eligibility is confirmed, participants will be invited via the survey website to complete a background survey (attached). The survey will ask participants to include an email to be contacted at if they are selected for interview.

Following this, participants will be selected for interviews using maximum variation sampling. Key variations sought are: sociodemographic characteristics (age, gender, geographical location), mode of rehabilitation delivery (in-person vs remote, one on one vs group-based), and setting of rehabilitation programming (in-patient, homecare, out-patient)

Data collection: Data collection will involve a background survey and a qualitative interview

Survey: The background survey will gather sociodemographic information (i.e., age, sex, gender, marital status, type of community of residence, education, employment status, and income .

Interview: We will use a technique called cognitive interviewing. Cognitive interviewing is a qualitative method used to assess respondents’ interpretation of items within a questionnaire. This method will allow us to explore the acceptability of MeEAP and further refine it, as needed for use in rehabilitation settings. Specifically, online interviews will begin with an opening question to contextualize participants’ rehabilitation experiences. Following this, the researcher (ML) will share their screen with the participant and walk through all of the questions of the MeEAP, allowing the participant to reflect and share their thoughts on each question. Participants will be asked to assess the ease of completion, relevance and clarity of the items within the MeEAP. We will ask probing questions as needed to generate new reflections or seek clarification. We estimate that each interview will last approximately one hour.

Data analysis: Survey data will be reported as mean and standard deviation or frequency and percentages, as appropriate. Interview data will be transcribed verbatim and descriptive statistics will be conducted as appropriate to contextualize the data and describe the sample. Data analysis will be via inductive thematic analysis. According to Braun and Clarke, inductive TA is focused on a grounding in the data and staying close to the meanings of the data. As well, descriptive TA will be used, as Braun and Clarke suggest its use for summarizing and describing pattered meaning.
Recruitment Dates: 2023-01-01 to 2023-04-30
Who can participate: Are over 18 Have a mobility impairment Are currently receiving or have received rehabilitation care within the past 3 months Are resident in Canada and able to participate in an interview in English Have access to an internet-enabled device (e.g., phone, computer or tablet)
Location of Trial: Queen's University
Trial Investigator: Miles Lambert, Dr. Afolasade Fakolade, Dr. Jennifer Tomasone, Dr. Trisha Lawson
Contact Information: Miles Lambert
16mwl1@queensu.ca
Trial Funding: Funding Package (part of Masters program)