Exploring the experiences of home tube feed users and their caregivers: a participatory action study

Studies

Study Title: Exploring the experiences of home tube feed users and their caregivers: a participatory action study
Rationale: To understand the lived experiences of adults on home tube feeds and to co-develop healthcare that meets their expressed needs
Study Description: Adult home tube feed users are not tracked within Fraser Health. Therefore we do not know about their experiences and challenges. We want to hear about the experiences of adults living with a home tube feed and their caregivers. This information will be used to improve healthcare services
Recruitment Dates: 2020-02-28 to 2022-04-29
Who can participate: Adults over the age of 18 who use or provide care for people who use tube feeds for nutrition (or have in the past) live at home in Fraser Health region
Location of Trial: Fraser Health Authority
Trial Investigator: Rebekah Sandhu
Contact Information: Rebekah Sandhu
rebekah.sandhu@fraserhealth.ca
Trial Funding: Vancouver Foundation