Studies

Study Title: Getting on with Your Life with MS: Evaluation of a New Self-Management Workbook for People Living with Multiple Sclerosis.
Study Description: Self-management is a process for people with a chronic health condition, like MS, to learn the knowledge, skills and positive attitudes to best manage the challenges of living with a chronic illness. Getting on with your life with MS (GETONMS©) is a new self-management approach for people with MS. Our team put together two e-books representing different methods of delivering important information about managing MS. The first e-book is containing information about topics important to people with MS and offers some tips for problem-solving. The second e-book targets many topics in the format of an activity book.

This project intends to test some of the practical aspects of using these personalized, self-management workbooks on the internet and to test their effects on self-management skills, symptom impact, and quality of life.

Following the completion of questionnaires online, participants will be assigned at random to receive one of the two e-book and use it for three months. After that period, participants will be invited to complete the questionnaires again as well as to describe their experience with the e-books. This is a pilot study, and the information gathered will be used to refine the workbook and migrate it over the Internet to make it as useful as possible.

We are looking for people over 18-year-old with a diagnosis of MS that can speak and read English fluently and have access to a computer or tablet connected to the internet. If you are interested in finding out if you are eligible to participate, you can fill out the survey at https://goo.gl/ibKs2X and the research coordinator will get back to you within a week. You can also contact the research coordinator at getonms.med@mcgill.ca for more information.
Recruitment Dates: 2016-15-08 to 2017-02-01
Who can participate: People over 18-year-old with a diagnosis of MS that can speak and read English fluently and have access to a computer or tablet connected to the internet.
Location of Trial: Québec
Contact Information: Vanessa Bouchard
getonms.med@mcgill.ca
Trial Funding: Edith Strauss Rehabilitation Research Projects