A longitudinal study of Resilience Among multiple sclerosis Care partners over Time (ReACT).

Studies

Study Title: A longitudinal study of Resilience Among multiple sclerosis Care partners over Time (ReACT).
Rationale: Care partners are close friends or family members who provide support or assistance for people with MS. Support could include physical (e.g., household activities), emotional (e.g., encouragement), or informational (e.g., sharing information about resources). Assistance could be physical (e.g., transportation), emotional (e.g.,encouragement) or informational (e.g., sharing information about community resources). Providing ongoing support for a person with MS can be stressful and these responsibilities can have a negative effect on the health and wellbeing of care partners. Resilience may protect against the negative effects of caregiving. Resilience is the ability to adapt well and thrive in spite of a serious challenge or stressful situation. This study will examine how resilience changes over time and the factors associated with resilience among care partners of people with MS. The experience of resilience in very stressful and challenging situations, like the current COVID-19 pandemic will also be explored
Study Description: If you agree to participate in this study, you will be asked to complete an online survey on a yearly basis over a period of three years. You may also take part in two interviews (optional) to explore your experiences of resilience, specifically during very stressful situations, like the current COVID-19 pandemic. This research is important to guide the development of interventions to enhance and sustain resilience among care partners of people with MS, and to identify individuals most likely to benefit from future intervention.

If you would like to participate, please click on or copy the following link into your browser:https://www.surveymonkey.ca/r/MS_carepartners.
Qualified participants may receive up to $30 in online gift card
Recruitment Dates: 2020-05-08 to 2021-06-30
Who can participate: Current care partners who: are over 18 years old, live in Canada, provide physical, emotional or informational support for a close friend or family member with MS, can complete an online survey in English, and have NO difficulty with memory, calculation, or reasoning that significantly interferes with their daily functioning may qualify.
Location of Trial: University of Ottawa
Contact Information: Clinical Exercise Physiology Lab, uOttawa.

cepl@uottawa.ca
Trial Funding: None