Studies
Study Title: | Navigating The Unknown: Exploring the Lived Experiences of Persons Newly Diagnosed with Multiple Sclerosis in Canada |
Rationale: | This study aims to understand these initial reactions, the challenges they face, and how they cope with the diagnosis. By interviewing newly diagnosed persons, the research seeks to uncover their emotional and psychological responses, as well as the personal strengths and coping strategies they use. The goal is to provide insights that can improve support and care for newly diagnosed persons with MS. This includes informing healthcare professionals and policymakers to better address the needs of this group, ultimately enhancing their quality of life and mental health. |
Study Description: | This study explores the experiences of persons in Canada who have recently been diagnosed with Multiple Sclerosis (MS). MS is a chronic disease that affects the central nervous system, causing symptoms like fatigue, muscle weakness, and balance issues. Canada has one of the highest rates of MS in the world, making this research particularly relevant. When persons are first diagnosed with MS, they often feel overwhelmed and uncertain about their future. This study aims to understand these initial reactions, the challenges they face, and how they cope with the diagnosis. By interviewing newly diagnosed persons, the research seeks to uncover their emotional and psychological responses, as well as the personal strengths and coping strategies they use. The goal is to provide insights that can improve support and care for newly diagnosed persons with MS. This includes informing healthcare professionals and policymakers to better address the needs of this group, ultimately enhancing their quality of life and mental health. Procedures Involved in the Study: Interviews: Completing the Interview: Optional Information Session: |
Recruitment Dates: | Starting Date:
2024-09-12 Ending Date: 2025-09-12 |
Who can participate: | Aged 18-59 - Diagnosed with MS within the last two years, with a minimum of six months since diagnosis to ensure participants have had sufficient time to begin establishing coping mechanisms and coming to terms with their diagnosis. - Proficient in English - Able to comprehend and follow study protocols |
Trial Institution: | Western University |
Trial Investigator: | Victoria Smye, and Co- investigator: Saba Hyarat |
Contact Information: | shyarat@uwo.ca |
Trial Funding: | self- funded, There is no grant or official proof of funding letter |