The Patient Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) Study


Study Title: The Patient Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) Study
Rationale: The burden of chronic disease is huge and changing how health is conceived and delivered. As recognition of the growth in multi-morbidity and the central role patients play in managing their chronic conditions grows, health providers, and systems are trying to respond. Yet, existing measures of chronic disease self-management are inadequate. Better clinical and research tools to assess patients’ ability to manage and cope with multiple conditions, are needed so that we have the evidence to improve care and inform system redesign. Our aim is to improve chronic condition management by developing a feasible, patient-centred measure of chronic condition self-management that will become the primary instrument for both clinical care and research.
Study Description: The International Chronic and Complex Conditions Research Group (IC3RG) is recruiting people to complete an online survey.

To participate, you must be 18 years of age or older, live with 1 or more chronic conditions (includes mental illness), and read/speak English. You can live anywhere, but must have internet to access the online survey. You will be asked to complete an ~25-minute survey, and your responses will help the research team design a questionnaire that will be used to assess patients' ability to self-manage their chronic conditions.

Thank you for considering participating in this survey, and please feel free to share with others.

Link to Survey:

This study is approved by the NSHA Research Ethics Board (#1025263). For more information please visit our project webpage:

Recruitment Dates: 2020-03-11 to 2020-12-31
Who can participate: Anyone who is 18 years of age or older, speaks/read English, and lives with 1 or more chronic conditions (includes mental illnesses). The study is open to participants world-wide, but participants must have internet access to complete the online survey.
Trial Institution: Dalhousie University
Trial Investigator: Dr. Tanya Packer
Location of Trial: Nova Scotia
Contact Information: PRISM-CC Research Team at or Kylie Peacock at
Trial Funding: Canadian Institutes of Health Research (CIHR)