Studies
| Study Title: | Changing the caregiving landscape: A digital toolkit to enhance resilience in family caregivers of Canadians living with multiple sclerosis |
| Rationale: | To determine the content and features for developing a digital toolkit to enhance the well-being of family caregivers of Canadians living with multiple sclerosis (MS). |
| Study Description: | Researchers at Queen’s University and the University of Ottawa invite you to participate in an online survey to inform the development of a digital toolkit for enhancing MS family caregiver resilience. If you agree to participate, we will ask you to rank the proposed content, design features, and delivery format for the toolkit in order of priority. We will include items with at least 70% of participants ranking as important/most important in the final list of recommendations for the toolkit. The survey should take about 30-45 minutes to complete. In appreciation of your time, you will receive $50 in an online gift card for completing the study. |
| Starting Date: | 2024-04-01 |
| Ending Date: | 2024-06-30 |
| Who can participate: | You may be eligible to participate in the online survey if you reside in Canada AND you meet ONE of the criteria below: 1. Provide unpaid assistance for a family member or close friend with OR 2. Have paid/volunteer experience in a formal care (e.g., clinic) or community-based organization providing services for people with MS and/or family OR 3. Have been the first/lead/corresponding author on at least one recently published peer-reviewed article about MS and/or family caregiving Please click the link or scan the QR code below to complete the survey. https://queensu.qualtrics.com/jfe/form/SV_8GHi4NuPdtQ3lbg  |
| Study Institution: | Queen's University |
| Study Investigators: | Drs. Afolasade Fakolade, Marcia Finlayson, Jennifer Tomasone, Tracey O’Sullivan, Lara Pilutti |
| Contact Information: | careco@queensu.ca Or h2g@queensu.ca |
| Trial Funding: | Social Sciences and Health Research Council (SSHRC) Insight Development Grant |